So we were going to ride off into the sunset and watch our girl grow up to be all normal and stuff, but it didn't quite work out that way. She has had some occupational therapy to help with a slight speech delay and to refine some fine/gross motor skills, but other than that she has been a champ. People meet her and have no idea she was a preemie. Even the doctors are shocked when they meet her to find out she was a 24-weeker.
Then things went wrong...again. Azure has been diagnosed with hepatoblastoma. A tumor in the liver. It is rare for children to get liver tumors but if they do get one, this is the most common one for them to get. About 10% of cases have metastasized in the lungs upon diagnosis. Guess what, we have "nodules" in the lungs. We started chemo last week and are looking at a good six months of chemo, surgery then more chemo. It is treatable...if we caught it in time.
I have thought all her life that we were living on borrowed time and that we were never really meant to have her. I thought we cheated death when she survived her birth, then again graduating from the NICU, then again when her heart stopped at home and I had to revive her from her worst bradycardia episode. Never, ever, ever take your loved ones for granted. I believe she can beat The Big C, but it will not be a fun ride.
I am working on a new blog to follow our journey through treatment. It has nothing to do with fertility and I will not handle it the same way as this blog, so I do not want to link them. If you are interested, email me at bluetrunks at sbcglobal dot net and I can get you the new information.
Thank you for your continued support. It worked wonders last time, hopefully the same will be true again.
Sunday, July 06, 2008
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20 comments:
Hi, I just came across your blog today by following a link from A Little Pregnant Julie's site. I am so sorry about your little girl and hope very much that she recovers soon and that you and your family find the strength to get through this. It never seems fair when children get sick, but it seems even more rotten when you’ve had more than your fair share of hard luck and she was so hard fought for. Good luck and best wishes, Losh.
Oh, I am so tremendously sorry to hear that. We will keep you all in our thoughts and prayers.
Oh my goodness. I'm so, so sorry. I would like to keep following her story. You're all in my thoughts.
Oh, Blue. I'm so, so sorry. I cannot even begin to imagine what you're going through. You and Azure will most definitely remain in my thoughts.
NO NO NO NO! Just....NO. Oh, Navy. I don't know what to say. I'm thinking of you and praying for your beautiful girl's speedy recovery. I am so, so sorry. *hugs*
Oh no. Why why why. It blows my mind, I am so sorry, I have no words. Reading your post was a shock, I cannot imagine what you are going through. I will pray for you guys to find the physical and emotional strength to get through this. I will be sending you thoughts, I will be believing that she can beat it. I don't know if you can see my email address from this comment - if you can't I will send you a message separately so that maybe you can send me the link to the new blog.
(I am a mostly-lurker who has found great inspiration in your story. Yours was one of the very first blogs I found at the beginning of my adventures in infertility, years ago. Thank you for sharing.)
oh Blue. This is not the update I wanted to hear from you. I am so sorry.
I can't imagine what you're going through but my thoughts and prayers will be with you and your family.
My thoughts are with you and your family. Your strength and Azure's strength are remarkable. It is amazing all that you've been through at her young age.
I would like to follow you on your journey with Azure, please send me your new blog address.
I am so very sorry to hear about Azure's cancer. My thoughts are with you both, and I will be hoping from afar for a complete response to the chemo and radiation.
I would very much like to continue to follow your story and will look forward to the link.
--Bugs
Blue - Long time lurker, non-frequent commentor. Your post today has brought a tear to my eye but Azure has proven time and time again that she is a fighter. I hope to continue to follow your story at your new home.
oh sweetie I'm so so sorry to hear this news. Awful. I would love to stay in touch and will be thinking of you all.
I could not even open the comment window the first time I read this tonight. It took my breath away. I'm so very saddened to read about what your family is going through. I'll keep your beautiful little girl and your family in my thoughts.
I just clicked on your link via Thalia in hopes that you posted something and never dreamed this would be the news.
I am so sorry that you are going through this.
Hoping so very much that this was caught in time and that this miracle baby pulls another one out.
I can't imagine what you are going through. I can't exactly remember when I came across your blog but have been following for a couple of years now. I check your blog periodically to see if you have any updates and am so sorry to see this one. I would like to continue reading if you could send me a link to the new page.
Megan
Thinking of you and your precious girl ~
I was a long time reader of your blog and occasionally check in to see if there are any updates. I am so very sorry to here about Azure's illness - it's simply not fair. My thoughts are with you and your family through this tough time.
I am so trmendously sorry about your little girl. I have my fingers crossed.
joey
Oh sweetie I'm so sorry to see this news, and so sorry it took me such a long time to see it. So very much hoping for you all, that Azure can beat the horrible situation she's in, yet again.
Oh my. I am so sorry. I don't know if I've ever commented before, but I have read. I am firmly hoping Azure does rock through all this,
xx
J
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