Saturday was such a strange day! We started out worried about her echo-cardiogram to tell us whether or not she needed the surgery to close the PDA. The fabulous news is that she did not need the surgery which was a major victory for us. We were so relieved she wouldn't have to move to another hospital and she wouldn't have to go through the trauma.
We went back that evening to visit her and the doctor was there and explained to us she was having trouble with her lungs. It may or may not be an infection and she had a bit of bleeding in her lungs. For some reason they couldn't explain she was getting enough oxygen but she wasn't getting rid of the carbon dioxide. They did chest X-rays and were checking her blood gasses every two hours instead of every six like they had been before.
Talking to the doctor he made it sound very bleak. He suggested we could try a different kind of ventilator (and oscillator) which vibrates the oxygen in and the carbon dioxide out instead of the normal in and out breathing. We left feeling absolutely crushed and not sure how this would turn out. I was terrified of the oscillator because the little girl in the next bed (the 23-weeker) that didn't make it had an oscillator. I didn't want to share this fear with T however since that little girls death hit him really hard. The funeral is today by the way, it was in the paper yesterday.
They started Azure on steroids to beef up the lungs, adding more elasticity so they could inflate better. She seems to be responding well to that. She is also on a new antibiotic just in case it is an infection of some kind. They gave her platelets which seems to have stopped the bleeding in her lungs and she is resting much more comfortably. (Her blood may not have been clotting leading to blood in the lungs and a bit in her urine. The platelets helped restore the clotting which stopped the bleeding.) She didn't seem to be in distress before but she was agitated, couldn't sit still or didn't find her position comfortable.
Sunday it seemed like everything turned around. She is sleeping well and her blood gasses have gotten a bit better and are now maintaining. We also learned to talk to a nurse after talking to the doctor since he apparently likes to give the worst case scenario. The nurses will tell us the same information but it doesn't come across as doom and gloom from them. They are much more practical and reassuring. (My personal opinion is that the Neonatal Intensive Care Unit is NOT a place to be spouting off worst case scenarios. We have enough on our minds without unnecessary worry.)
So, all in all, she is doing well. Her skin has improved, she has not had insulin in a couple days, she is getting enough fluids and oxygen and her heart rate and blood pressure have been strong and steady. Her eyes are open and peaking around when the lights are dimmed down.
It was a long weekend but it looks like things are improving. We know there will be ups and downs on this journey. I think this weekend was a bit of both, but we are coming out on the good side.